Kingston Kia Kaha Aiono was born on March 21st, 2004 to his parents Sarah and Hagoth. Kingston was diagnosed with XLP on Wednesday January 3, 2007. He passed two days later on Friday January 5, 2007 .Losing their eldest son to a primary immune deficiency disease was a heartbreaking journey for Sarah and Hagoth.
Kingston’s diagnosis and passing prompted immediate testing for their second son Phoenix, who was also diagnosed with XLP. The early detection allowed the doctors, Sarah, Hagoth and Phoenix time to find a bone marrow match and donor. Phoenix underwent his bone marrow transplant three months after his birth successfully saving his life.
Friends of Kingston is a non-profit organization which exists from a heartfelt desire to share knowledge and emotionally strengthen and physically assist families dealing with children suffering from primary immune deficiency diseases.